When I was first diagnosed, my friends, family and colleagues wanted to help and bought me things that make me smile. I still use them now and they have kept my spirits up throughout this journey. I am aware however that finacially, I’m pretty stable and others going through this process may not be. If this is the case, there are lots of small things that are needed, which all add up. Even if finacially they’re not a burden, the effort and thought needed to source them can be tough. So I’ve put together a list (who doesn’t love a list) of the things I’ve needed along the way that I didn’t think about when people asked me what I needed at the beginning.
Chemotherapy list
- A thin poncho for chemo days
- Acetone free nail polish remover
- Dark nail polishes (something to do with preserving your nails by protecting them from UV light? Not sure how much science is there but all the women I know swear by it.)
- Rich tea or malted milk biscuits – for when you’re hungry but can’t stand the smell or taste of anything
- Sour friuty chewy sweets – I would have thought this was the last thing I’d want, but a fellow chemo patient gave me some and they were the best thing in the entire world! Some people want ginger sweets for nausea, but I didn’t feel that way; I still have a packet in my cupboard though!
- Sleeping hats or hooded pyjamas – bald heads get cold at night!
- Eyebrow pencil – right at the very end, once my head hair started growing back, my eyebrows fell out! Just when I thought I had survived that possible side effect, they finally got the memo.
- Sun hats / beanies – your head will need shade or warmth no matter how much hair you have left.
- Mints – for the smell of chemo (some people don’t notice this at all, others become fearful of the smell!). I used to pop a mint imperial in my mouth every time chemo started or I got a saline flush. One time solution!
Surgery list
- Post surgery bras! Here in the UK a voucher for RECO or M&S would be highly valuable as a gift. The RECO bras are what my surgeon suggested as the best due to the compression element they provide, they’re good but at £40 each, it’s steep. (As my surgeon told me in no uncertain words – get 2 in black because you’ll leak and need to wash one.)
- Front opening, loose fitting tops – you can’t lift your hands above your head for a while, so finding these tops for the season you’re in can be a challenge.
- Front opening, loose fitting pyjamas
- Dressing gown and slippers for surgery day – don’t be me searching the local supermarket for slippers on the morning of surgery!
- Neck travel pillow – you know the kind you get in airports – in my house, they’re called boob cushions! They work perfectly with car seat belts to cushion your boob area but not put pressure on because of the hole in the middle. And they hang neatly over the gear stick when you’re not using it. Personally, I prefer the ones that are half cushion and half beany.
Radiotherapy list
- Strappy tops that you can pull down to expose the breasts but cover your torso.
- Moisturiser – needed 2-3 times a day as a minimum.
General list
- PARKING! At £4 – £13 per hospital trip it all adds up! (I got a permit for chemo and radio days, but all the scans, checks, blood tests, surgery, pre-assessments, more scans – all pay for parking).
- Dentistry before chemo – got to make sure you’re all functioning there otherwise the pain is real. (Update: dentistry post chemo too! My gums were a wreck.)
- If you have a PICC line, clothes that are baggy enough in the arm not to pull the bandage around are really important. Similarly, tops you can wear so people have easy access to the line. An unexpected and superficial frustration, but still a frustration!
- Water bottles – making sure you get enough water is vital throughout the process but monitoring/managing/remembering this when you have fatigue is challenging. The husband came up with a plan for this: x5 600ml bottles that were filled daily. This way I could just go and pick one up when I needed a new one (or better still, the kids could) and at the end of the day, we knew the intake. Why not just buy a big one you ask – because you can’t lift it. I struggled to refill my 800ml bottle at the beginning, so we made a new plan.
- Moisturiser, moisturiser, moisturiser and when you think you don’t need so much, moisturiser. Unperfumed, uncoloured and thick, at every step of the way. Personally, I like Simple and Child’s Farm the best (having tried a lot).
- Eye liner – for when you have no eyelashes but want to feel ‘normal’ out in the world
- Eye tests and new glasses – post chemo checks as your eyes can change shape apparently!
- Slightly scented candles – this may be a personal one but my sense of smell became VERY sensitive during chemo, so in my house I became the lady with a candle to ward off the general smells people make.
- Anti-histamines – that pesky pollen and dust is gonna get you when you have no immune system!
- Predictable healthy lunch – again this might be a personal one but not having to think about it and not spend too much time in the kitchen (amongst the smells) was the right thing for me.
- Alongside being healthy with your diet, remember the sugar and salt! I forgot these things and they made a big different to me once my nurse pushed me in the right direction.
I am a problem-solver to the point of barely noticing the problem now before I have a solution! This is who I am and I faced each step in this journey with this Positive Mental Attitude. Yes, I had my down days but after a period of wallowing, I picked myself up and adjusted my attitude. I know however, that many people are not able to do that. Many people do not have the support I have or the level of privilege I have. These lists may seem trivial, but they are the things that can really get a person down in amongst this battle. These are the things that can bring on the tears in an otherwise strong warrior. When you’re too tired to think, can’t undo a lid, can’t lift a bottle, can’t remember a common word and you’re bald and cold and too hot at the same time, these little things are what you NEED.
